Changes From Chronic Illness, Thoughts

Are You Kind to Yourself?

I don’t think that I was ever kind to myself, even as a child. It’s hard to admit this kind of thing; it’s painful to reflect on your past and see that you’ve never treated yourself properly. It also leaves me wondering why I continue to allow such a thing to happen.

I don’t like to put blame on others, but in all honesty, I do feel deep pain when I think about how I was never raised to appreciate myself–pretty or ugly, thin or fat, and smart or fairly smart. Maybe it was the timing of when I grew up. Life today is filled with parents raising their children to be body positive and accepting, but that wasn’t the case then at all.

I was kind of just expected to do well in things, and it was not in my parents’ nature to make a big deal if I did do really well on a test or succeeded in anything, really.

I did get straight A’s. I went to college for free my first two years on a scholarship for graduating in the top 15% of my high school class. I graduated college with the highest honors. I knew this was an accomplishment, but I still didn’t feel as smart as others. I wasn’t ugly in my eyes, but I felt ugly compared to others. I wasn’t fat, but I didn’t fit the mold that society had created for me to fit in. I didn’t like sports, so I danced for 10 years instead. I wasn’t the worst dancer, but I also was definitely not Juilliard material.

I couldn’t find anything that I was good at or liked about myself. No matter what I achieved, I still didn’t think that was good enough. I would internally tell myself that I was a nobody, that I hated the way I looked, and that I hated myself as a person. I had personality characteristics that others would define as meek or lacking confidence, and I read deeply into that and believed it.

Through all of my twenties, I was anxious constantly, afraid to make mistakes at my job, and if I did, I couldn’t stop thinking about it. I’d say sorry over and over again, most times completely unwarranted, and I continue to do this in my life currently. It’s a hard cycle to break, and trying to undo thirty something years of seeing yourself this way is difficult.

You would think that I would have learned to be a bit more compassionate and sympathetic to myself since I became ill, but that couldn’t be farther from the truth. I took this situation, and I found ways to dislike myself even more. I was mad at my body for failing me. I was so depressed and feeling ugly on the inside that I told myself I was disgusting on the outside too. As I was trying different medications for the first time and also experiencing side effects of those medications, like weight gain, I was mad at myself for not being able to control it.

The only thing I can ever remember saying to myself that was remotely positive was that I was strong. It did take three chronic illnesses and two mental illnesses for me to see this. It took endless procedures and tests and horrific pain, but it’s the start of me trying to accept who I am and make something optimistic out of it. After being told by doctors that I was strong because I chose not to be put out for procedures that you normally would be put out for, that’s when it became apparent that maybe I wasn’t as appalling as I had told previously told myself.

It may only be one word that I’ve managed to let myself believe, but if I can take anything positive from this journey that I have been led to take, it’s that I saw the depth of how much strength existed in me. It came out because I was in the worst situation of my life, and for once, I acknowledged it instead of twisting it into something pessimistic. That one word was so impactful to me that I created a tattoo to put on my body that means to me “female strength”. Whenever I think I can’t face one more battle, I look down at my arm, and I am reminded that I can do it and get through it.

I hope that as time carries on, I am able to speak to myself in a kinder way. I may have only told myself one nice thing in my thirty-four years of living, but it was a word so powerful that I actually listened to it.

Thoughts

Dreams and Aspirations When You’re Ill

If someone were to come up to me right now and ask me what dreams or aspirations that I had for myself, I’m not sure how I’d react. Sadly, these type of questions are triggers for me. Any questions pertaining to a career, or family, or what I do in my free time agitate me because I’m so uncomfortable with myself. Even if I’ve accepted who I am now and the journey that I’ve been put on, this type of small talk still manages to get under my skin.

Normally, people might respond by saying that they aspire to travel around the world; others might hope to move up in their careers. I thought that I finally had one of my dreams come true of getting married, but just this past year, that dream of mine was destroyed when my husband told me he thought it was better for us not to be together and that he didn’t have feelings of love for me anymore. Side note…we were together for 8 years, and out of that time, we had only managed to be married for one year.

I thought that I had found someone that loved me and was willing to be there for me, for better or worse, and was going to be my partner for life, but I was greatly fooled. I, simply, don’t believe in divorce, especially when I feel problems can be worked out. While it was never said directly to me, I know that my illnesses had a lot to do with it, and I could sit here and hate the universe for putting these diseases on me, or I could take this as a life lesson and move forward. I have chosen the latter, as much as I hate the idea of accepting a loss so great that it makes me feel like I have a hole in my body.

For the past year, I have done nothing except try to live day to day. Inner demons have told me that I’m unlovable. Some days, I’ve thought to myself that no one would really miss me if I was gone. If someone could toss me so easily when we had a almost a decade of memories, I’m nervous that going forward, people will leave me again.

My current state leaves me with small aspirations like getting through a week where I have multiple appointments; I aspire to push myself to get up every single day when my brain tells me not to. I don’t tell people about these, not because I’m embarrassed by it, but mainly because these would not be relatable to most.

On the other hand, I did dream big that 2020 would be the year in which I found my purpose here on Earth. Guess what? There are about four months left in this year, and I still have no clue what it is. I think this year has pretty much been a wash for most people; anything that anyone had set out to do or accomplish was affected by the pandemic. Maybe I’ll be able to figure out my purpose still, and maybe I won’t. I hope that one day it does become crystal clear though. Remember to keep dreaming, even if it’s the smallest thing you can think of.

Thoughts

Being Happy When You Are Ill

I was reading someone’s blog when I came across this question:

What do I need to feel happy on a day to day basis?

At first, I read past it, but it made me stop to think a little, and I thought it might be something interesting to explore.

I’m not the average person; I no longer think or live like the average person. I am someone who lives with illnesses, anxiety, and depression on a regular basis. I have had to stop working due to this. My goals of the past are no longer my goals of the present. The things I worry about are far beyond what others might have to think about.

My mood? I’ll just say that it’s taken years of practice now to fake that I am happy and live a life that I enjoy. Parties, social outings, and even just being around family are daunting. I’m so good at pretending to feel well that when I look at my handful of pills in the morning, it seems almost surprising. The truth is, I need all of those pills just to function at even a milder capacity than others.

If trying to figure out what I’d need on a daily basis to make me feel happy, at a minimum, I would say knowing without a doubt that someone cares about my life. If this sounds abnormal or pathetic to you, I’m sorry that you can’t understand it.

There’s a difference between depending on others for your own happiness and depending on others to feel like you have a place in the world.

With the depression that comes with my illness, I’m often confined to the ruminating thoughts in my head. Those depressive thoughts range from feeling like you are a nobody anymore in society to pure loneliness. I feel like I’m just a body getting out of bed each day only to do the same exact things that I did the day before.

If there was just one person, such as a friend, family member, or significant other that could tell me each day that I do bring something to this world and mean something to them, my life would be better. It would be a daily reminder that someone cared enough about me to reach out.

When you become ill, it’s very isolating. You have to cancel on people a lot, and you may lose people along the way who have a difficult time understanding.

In addition to that, I would have to say that I need my dog in my life to help me feel happy. A lot of people don’t understand the bond between a dog and their owner; I didn’t until I got one who rescued me at the time that I was rescuing him. He makes me laugh and gives me unconditional love, which is hard to find in people. He feels my mood at every moment of the day and adapts according to it. If I’m sad, my dog will be very attached to me. If I don’t feel well, my dog will lay down with me for the whole day and sleep with me.

There have been a lot of mornings where I haven’t wanted to get out of bed, but since I got my dog, I’ve had a reason that I NEED to get out of bed. I have to take care of him by feeding him and walking him. By that thinking, he NEEDS me to physically survive, while I need him to be the thing that pushes me to get exercise, get sun, and take a shower. If I wasn’t accountable for him, I think that I’d be in a very horrible mental state.

What this boils down to is that I need things that can show me compassion and love in order to keep myself happy. As long as I have those two things day in and day out, I know that I’ll be okay. It really says something about the type of person that I am. I try to be that person for everyone that I am very close with; I do daily/weekly check in’s and make sure that they know that they matter to me and that I love them. I give it out because that’s who I am, and I guess deep down, it does really matter in my heart that I receive something similar.

Of course, I do NEED food and water to keep me happy. (I get hangry.) However, aside from that, these are the things that truly matter to me. All things of materialistic nature I could do without.

chronic illness, invisible illness, Thoughts

What Do You Do For A Living?

It pains me that America has become a society where we now care more about what you do for a living than who you actually are as a person. Some might argue that they are their careers, and while I understand that to a degree, everyone still has their own personality and characteristics.  You are a human being, who was given feelings and emotions and have likes and dislikes for a reason.

As someone who is chronically ill, the question of what I do career wise (and it’s usually the first one to be asked), makes me speechless. It’s not the question that makes me uncomfortable; it’s the mere fact that I don’t know how to go forward from here.

This one question unravels one more and then sends me deeper and deeper down the rabbit hole. I, first, have to announce that I am sick, and I’m sick enough to where I don’t work. The confusing part is people cannot grasp this, no matter how many ailments I describe or the severity of them; it all comes down to me looking like I’m perfectly fine on the outside.

After I get the confused, one foot out the door look, I state that it took me three years of fighting for myself to be approved for disability. At this point, they may or may not understand that this statement means that I have some kind of money coming in, but they still think I should be able to work.

What I then do is describe what my last full-time job was before becoming ill and the toll of trying to work with my conditions. If the person is still standing in front of me after I’ve said all of this, then I will go on to say what some of my favorite hobbies or current interests are.

The main point I’m trying to make here is why can’t we start off by asking what someone likes to do for fun or where their favorite place to eat out is? Why can’t the career question come after you have started to get to know the person?

Our culture is one where everything is always on and moving forward. We feel like we can’t waste a minute of our lives on someone who, ultimately, won’t fit our criteria. Saying you don’t work or don’t work because you are unable to is associated with negativity. You’re either thought of as being lazy, a gold digger, or you have no life goals.

I’d say the majority of people will believe that you chose the path of not working. It’s rarely ever perceived as this life situation happened to you, and you’ve had no choice but to adjust to it.

Personally, I care more about how someone treats me or others above what their job is. You could have the most meaningful, impactful career and be the biggest asshole to people.

Why has our society succumbed to this thought process?

It’s very confusing to me, and I think about it a lot more than I should.

The next time you meet someone for the first time, I challenge you to not ask them about their jobs/careers until the end of the date (if you’re dating) or towards the end of the evening if meeting new people through others you know. You might just see that human beings are quite amazing, even without knowing what they “do for a living”.

Uncategorized

My Latest Sjögrens Symptom

For anyone who has Sjögren’s, I was recently surprised when towards the end of the day, my eyes were hurting so badly.

I couldn’t look at a screen, be it a phone or the tv.

I didn’t know whether heat or ice would be the better option, so I tried both.

I used eye drops that I had, but I had no relief.

As those of us who experience any kind of illness can tell you, I did the worst thing possible and began googling. Normally, I wind up stopping the research after just a little while, mostly due to the fact that I read about horrible secondary illnesses that it could be or become scared of what tests might have to be done.

This time, I landed on an actual source of help. It had a few at home things to try and was helpful. The first thing I found out was that this could have begun due to too much “screen time”. I had initially figured that maybe it could have had something to do with that, but I really didn’t think I was on my phone or computer any longer than usual. Next, there was a recommendation to buy blue light glasses, which happen to be everywhere right now. After reading from a few different sources, it became clear that there wasn’t any medical evidence to back up that blue light glasses did help from straining your eyes; it was merely just people giving their opinions that they felt a difference. Needless to say, there were no blue light glasses purchases for me that night.

I then continued to read on, and it said to buy “Preservative Free Lubricating Eye Drops”. I looked at the bottle I had just used, and nowhere did it say that it was preservative free. I wondered why my doctor never specified this. Perhaps it’s something that an eye doctor would know more so than a rheumatologist. It didn’t really matter because I don’t have coverage for any type of eye exams, so I figured K would try to see if these specific drops helped any.

I bought Bausch + Lomb Soothe Preservative-Free Lubricant Eye Drops, Box of 28 Single Use Dispensers at just under $10. They were the cheapest kind with the highest ratings. I’ve been using them for three or four days now, and I have not experienced that overtired, sore, throbbing pain that I had prior.

I guess that small detail about them having to be preservative free really did matter after all. I wanted to let anyone know who may experience pain like I did that this might bring some relief to you. The internet can lead you to a lot of fallicies and dead ends, but sometimes, it may also lead you to a helpful answer.

Changes From Chronic Illness, Uncategorized

The Hidden Trauma

This past weekend, I was showering when I saw what looked to me like a piece of lint on my body. I pulled it off of me, and there was blood.

Trying to add it up in my head took me a few seconds, and I held the “lint” up to my face only to reveal that it was a tick. My first reaction was that if I had been bitten, I needed to put the tick in a container to show the doctor.

I reached outside of the shower, grabbed a tissue, put the tick in it, and I turned the shower off. I started hysterically crying and from there, I couldn’t stop for about 30 minutes.

In 34 years, I have never been bitten by a tick. New Jersey is very prone to ticks, but I managed to get through life without getting them on me. I wondered how long this tick had been on me.

I was googling like a mad woman, with information saying that if it had been 24 hours, there was a likely chance that disease could have been passed on to me, depending on what kind of tick it was. My final thought was that I couldn’t handle another illness on top of what I have already.

After I got my mind in the put the tick in the container and finish showering mode, I just continued to sob. It became clear to me that my experience all of these years with my various illnesses had done a lot of unseen damage.

I like to think that I’m tough; I try to not complain and often times don’t realize the amount of pain that I’m dealing with because I have tolerated it for so long. However, in this moment, I understood that maybe my strength was being confused with burying my trauma.

When you take lots of medications and deal with mental and physical pain, you kind of shove everything you are coping with below the surface. This time, it just hit me in the exact spot to where I became exposed and my walls I put up cane crumbling down.

I know I’m bound to be diagnosed with more things along the way, and at this point in my life, I don’t think I can take another hit. That I now know.

I was going to immediately going to a quick care when it happened, but knowing I have an appointment this week with my rheumatologist, I figured I would give it a few days and talk to him about it. I know that I worry excessively. I know that I tell him every single ailment that I can feel going on, but he actually listens and I am so grateful for that.

I can only hope that he doesn’t share the same concern about it as I do.

chronic illness, pain, rheumatoid arthritis, Treatment

When I first began seeing doctors for the health issues that I was having, I would have never pushed. I would have mentioned whatever was bothering me, let the doctors respond, and I’d do whatever it is that they said or recommended.

As time went on, and I felt like more and more was being brushed off, I actually gained a voice. Being silenced had the opposite effect on me than it should have. If one doctor wasn’t taking me seriously, I proceeded to the next. If another doctor only felt an x-ray was necessary and it came back that everything was normal, I pushed for the next test.

The message here is that we know our bodies best; we are the ones who have to live in them and suffer if we experience pain. A doctor can say that a test showed nothing, but ultimately, I can feel inside if something isn’t right.

Take my knees, for example. I started to have swelling in them, extreme weakness, and deep pain in both of them, right around the time of my diagnosis, and the pain hasn’t stopped since. I was told that it had to be my fibromyalgia. Nothing abnormal came back on my x-ray, the multiple times that various doctors sent me. I tried gabapentin, Lyrica, Cymbalta, and Voltaren over the course of a few years, all while the pain persisted.

Certain days, I would randomly feel throbbing pain. Other days, my knees would be weak, and I’d have to wear a support brace. Ice felt good, but it was ice–when it melted, it was nothing.

I eventually got to a point a few months ago where I told my pain management doctor that the pain would just not go away, and I explained how deep into my knee the pain went. He had already done an x-ray, so without hesitation, he told me to go get an MRI. A few days later, I received the results, and to no surprise, they actually found things going on. I felt relief at the fact that I knew something was there, and it felt like I was being validated. At the same time, I felt upset because something did show up.

Without using medical terminology, a cyst was identified in one of my knees. My doctor also told me that it showed that my knees were lacking the fluid necessary to properly move my joints. I was told that as I got older, I would develop horrible osteoarthritis if I didn’t take precautionary measures now.

Genvisc is what my doctor suggested. It’s a series of five gel injections. I go once a week to get them. Another term for these shots are “chicken shots” because that’s where they come from. The injections are actually hyaluronic acid; this is injected to replace missing joint lubricant. I began getting these right before the pandemic, but I had to take a break after shot number two when things became bad. I am going for my last shot this week.

I was told originally that these shots would last through the summer, and I would need to continue to get these. Until when? I’m guessing eternity. Have they worked? To a degree, I think slightly and slightly is better than no.

If you want to know how bad they hurt, I’ve had varying scenarios. The first injections, I passed out, and I have a very high pain tolerance. The second injection was better, but I couldn’t walk that day or the next. After the injection, it feels like your knee is so full that it could snap while walking. It’s partially numb, partially full of pain, incredibly difficult to walk on without being in pain, and although I’ll continue to get these, I wouldn’t say it’s an easy peasy little thing to get through.

By the third injection, I was expecting the worst, but that one wound up being my best. I was able to walk around a little that day, unlike the prior injections. The fourth one gave me SO much pain. I actually bruised from those injections. So, my fifth one will be a mystery, as all of the others were unpredictable.

I feel a few different emotions about all of this. Why couldn’t I have been heard the first and second and third times I complained about my knees? Why did I not hear about these gel injections until five years after my diagnosis. Why was I only presented with this type of treatment after another doctor of mine pushed for further testing? I’m not angry by any means, but the message here is to keep pushing for yourself. Keep advocating. The only person who can truly describe what’s going on is you.

Changes From Chronic Illness, chronic illness, Illness, invisible illness, pain, rheumatoid arthritis, sjogren's, Thoughts

Changes

I was able to download a copy of the e-book that I recently posted about that I’ll be featured in. I got around fifty pages in before I became antsy and started to search for my story. There was a lot of anticipation there; I hadn’t read my story since I was asked to look at any editorial changes that had taken place. Before that, it was my submission back in 2016.

The title of my piece is called “Wishing I Had a Heads-Up on My Autoimmune Illnesses”. Upon re-reading it, what struck me was the sentence where I said I had been suffering for a year and a half. A year and a half? If I was writing now, it’d say five years and seven months. My journey oddly still feels new while also feeling like I’ve been put through the wringer.

Reading that made me feel deep emotions of sadness while feeling proud at the same time. I felt sad because it took me back to my start, when I was so unsure and scared. It made me feel like I was living that part of my life again and struggling to figure out how I was going to get through each day. The sense of pride came from looking at where I was then and where I have managed to get in just a few years.

I’ve gone through many procedures, tried countless medicines, tried doctor after doctor, and found myself thinking many times that not living anymore would be less painful. While I am still trying different medications, I have a core set that seems to be keeping things under control. I eventually found myself a small crew of doctors that are here to support me and don’t discredit my pain. All of the procedures done were well worth it; all of the tests rendered to me helped to paint the picture that every symptom I’ve had is a reality.

I think different areas of the piece are reminders of the growth and acceptance that I’ve had over this time. There was a point, after this was written, where I realized that I was mourning the death of who I was prior to becoming ill, and I went through that cycle a couple of times, going forwards and backwards before ultimately accepting who I am now and trying to be at peace with it. It shows me how going to therapy and talking openly about everything that I am going through has helped me. I no longer try to hide the fact that I can no longer work or that I suffer from different mental and physical illnesses.

I no longer think about the life that I could have had; I now choose to focus on a life I can live, even if that means adjusting things or planning ahead. The most recent thing plaguing me in life is trying to figure out what I can contribute in/to the world; I’m spending a lot of time seeing what kinds of things make me happy and how I can make some kind of an impact.

This leads me to the book.

What started out as a small writing submission to someone has lead me to being a published author. Writing prompts on The Mighty took my stories to hundreds of thousands of people. I received comments on my work from people thanking me for getting it right on the message I was presenting. It feels so amazing; I never thought I could do anything like this. I grew up so shy and not being very open to many people.

I feel passionate about telling stories from the viewpoint of those of us with invisible and chronic illnesses, and I am going to continue to pursue it.

I’ll end with this quote:

“The man who moves a mountain begins by carrying away small stones.” ― Confucius

I like to think that these small achievements are adding up to something great!

 

Uncategorized

What’s Your Experience Been With Covid-19?

As my state of NJ is just going into our Phase 2 of a reopening plan, I have been wondering what everyone’s personal experience has been like with covid-19.

New Jersey was the number two state as far as cases. From March until just this past Monday, June 16th, we were basically shut down. At one point, parks were even closed, so you were only allowed to go to the grocery store or a store deemed essential, and walking around your neighborhood was really the only place you could be.

For all of us that do suffer from either mental or physical illnesses, we know what it’s like to not be able to go out shopping or not seeing friends and family a lot. We know the feeling of being confined to our spaces and what it can do to your emotional well-being.

When the governor shut the state down, it really didn’t affect me a lot because I had already been subjected to this all before. It’s odd to say, but I felt prepared for this and it wasn’t much different than my everyday life. The things I struggled with were extreme fear of getting the virus and anxiety of when and how I would be able to get a food order.

As soon as New Jersey had its first positive case of Covid-19, I was done going in stores and seeing anyone outside of my house. I was so scared, as someone with autoimmune issues, that I would be so easily susceptible to the virus. I stopped going to my doctors that I see so often to help me manage my conditions and only used the drive through to get my prescriptions.

I found myself angry that the opinions kept changing on whether or not we should wear masks. My stress levels were at all time highs; I could not step away from my computer until I could guarantee that I had a reserved time-slot in the near future to get groceries. Even when I did secure myself a grocery order pick-up, there was no guarantee that I would get any of the items that I had requested. The first couple of times, the food stores contacted me telling me that half of my order could not be filled due to lack of products. Imagine 56 items of your grocery order not being available. It was scary. My generation has never experienced something like this before.

My local news outlets would report what stores in the area had people testing positive every day, many of which I was getting my food from. The Facebook videos of family members of those I knew who were working on the front lines of hospitals were devastating. The governor here held a live news conference every single day on tv reporting the new number of cases that popped up overnight and the steps we needed to take to “flatten the curve.” There came a point where I had to stop watching and reading because I knew that was the only way for me to be able to calm myself.

It wasn’t until May 3rd that I went into my first store. It was a one time thing because it was my friend’s 40th birthday; I had placed an order for a very special photo book that I had to go inside to pickup. I felt horrible that it was a big birthday for her but she couldn’t do anything to celebrate.

I went to my local CVS expecting customers to be following the 6-feet social distancing guidelines and mandatory wearing of masks. A lot of stores had apparently made changes in their aisles so that you would not come face to face with anyone; I expected that this would be the case. I was so very wrong.

I walked inside and felt like I was in a daze. Within two minutes, I had sweat pouring down my face, distorted vision, and was going into a panic attack. It was a terrible experience that I regretted instantly. The amount of people in a tiny drugstore was way too much. There was no specific setup to avoid passing people face to face. Six feet distance? It was a total joke. One man was getting as close as possible to everyone because he was on a hunt for Altoids and annoyed that he couldn’t find them. Really buddy? You are risking the lives of others for a nonessential item like that?

I left telling myself I couldn’t go into another store. That trip solidified for me that people in NJ were definitely not adhering to the orders meant to protect us.

A couple of weeks later, I tried once more at a nearby Dollar Tree that only had two cars parked in their lot. This store was so empty and made me feel a lot more comfortable. I still felt weird physically, but it was not as bad as at CVS.

As of today, June 18th, I have not been in any other stores. I have no idea what any of the food stores look like inside; I hear the cashiers have shields in front of them and even behind them at the registers. I have not stepped foot into any big box stores like Walmart or Target. On Monday, June 15th, outdoor dining became allowed as did indoor shopping with limitations.

I have seen with even the smallest ban being lifted, people are not following guidelines. As soon as a state park opened back up, the lines were completely backed up. The first day that anyone could purpose beach badges for the summer, people were lined up on the boardwalk, some without masks and most not maintaining six feet distances.

It may just be my opinion, but I believe a second round of covid is in the near future. I’ve already heard about Florida, Texas, and Arizona’s numbers going up since things became open again. I don’t know how long I will continue to distance myself from others, but I can definitely say this is my new normal. I’m trying to adjust as best as I can. It’s been very offensive to me to hear others say that this pandemic is not real. It’s those same people that are the ones who could be asymptomatic, not wearing masks and spreading it to us with existing conditions.

The virus is real. I know of others that have family members impacted by this.

So, I’m curious, what’s it been like for you? I would be so interested in what’s going on in other states, if you at all contracted the virus, and how you have been managing.

Wishing everyone safety during this unfortunate time.

Anxiety, Changes From Chronic Illness, chronic illness, Illness, invisible illness, pain, rheumatoid arthritis, sjogren's

Becoming an Author

While I haven’t written posts or kept up with my blog in three years, I can tell you that I have continued to write. Writing has become something that has been both therapeutic for me and helped me to see that there are others who connect with what I’m speaking about. I have been lucky enough to have had pieces of mine published on The Mighty community’s page, some of which were re-published by Yahoo or mentioned in other people’s blogs.  I was also asked to become a contributor for a media/news company called Unwritten and dabbled with putting together three fashion related articles for them.

I also found a call for submission online five years ago, in which an editor was looking for people to tell their own stories about living with chronic illness. I was informed not too long after submitting it that my piece had been selected for the book. I’ve just been informed today that this book is in its final stages and will be released for purchase on June 26, 2020.

This may not feel like a big deal to most people, but never in my lifetime did I think that I’d be able to say that I was one of forty-two authors from around the world whose writing was chosen to be in an anthology book. To go from a nobody taking a stab at blogging to this point just makes me so incredibly happy.

Never in my life did I imagine or want these life-altering illnesses that I am facing, but they have given me a voice that I never had before and helped me to learn how important advocating from the chronic illness/invisible illness community is.

With that said, I am announcing the title of the book, which is:

The Things We Don’t Say: An Anthology of Chronic Illness Truths, Edited by Julie Morgenlender

If you want more information or a sneek peek at the book, please visit : chronicillnesstruths.com

On Friday, June 26th, the book will be available for purchase as an e-book or standard paperback. It can be found on Amazon.