About

Hello.  My name is Jamie, and I appreciate you taking the time to visit my blog and follow along with me.  I’m from New Jersey; born and raised and still stuck here.  I grew up being creative.  I danced for ten years and I loved and still love anything artsy.  Taking pictures of all of the small moments has always held a special place in my heart, as I can look back on exactly how I was feeling in that moment.  My latest passion has been cooking; I have no culinary experience, but I just love making food (when I am not too fatigued to do so), and I love seeing people’s reactions to it.

So, take all of those things in my life that I love/d, and imagine being diagnosed with a disease that attacks your healthy tissues and wears down your joints.  My joints that I need to dance, to cook, to live a healthy and active lifestyle, to cut, to craft, to do basically all things I previously had no problem doing.  I was diagnosed in 2014 with Rheumatoid Arthritis and Sjogren’s Syndrome, and my life has drastically changed since.

The purpose of my blog is to share my story…to connect with those who are also trying to cope with autoimmune diseases.  It’s to help those who may have family or friends with similar health issues understand how we, as a community with these diseases, feel and are affected on a daily basis.

This is just my experience.  I can’t speak for others, and I am not a doctor or in the medical field at all.

Thanks for listening.

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2 thoughts on “About

  1. Hi Jamie:

    I’ve read your articles on The Mighty and read your posts here on your blog. I know you live in New Jersey and grew up there.

    In a nutshell your diagnosis of Fibromyalgia and/or ME, RA, Sjogren’s combined with your symptoms of joint pain and inflammation, migraine, sweating, paralyzing fatigue, nap attacks, weakness, lack of endurance, gastro problems, hair loss, depression and anxiety all point to one thing: Lyme and Babesia.

    All I’m suggesting is that you be evaluated for all tickborne diseases by an expert. So you don’t have to spend your life on the couch. 😢

    I live in Chicago and have just Babesia. Here is the link to my (very abridged) article on The Mighty:
    http://themighty.com/2016/06/getting-diagnosed-with-babesiosis-my-experience/

    And my two Facebook pages:
    http://www.facebook.com/BabesiaBlows
    http://www.facebook.com/ChronicBeauty

    Sincerely,

    Wendy

    Liked by 1 person

    1. Wendy, I cannot thank you enough for reading all about my sicknesses and illnesses and being kind enough to express concern. What you wrote to me has been really eye opening for me. I discussed it with family members and friends already. Perhaps on just focusing on the rheumatology aspect of it, I’ve been missing the bigger picture that maybe it is something different altogether. I’m going to bring up your point about seeing an infectious disease doctor with my primary care doctor. I’ve had a pit in my stomach recently about how I think I have to have something other than what I’ve been diagnosed with because the meds just aren’t helping, and I can’t see how Sjogren’s would make me this fatigued and tired. From the bottom of my heart, thank you for sharing this with me, and hopefully I can get some answers. You are a truly brave person for endearing 31 years of the wrong diagnosis.
      Thank you,
      Jamie

      Like

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